Friends of the Center Newsletter - Summer 2021

05.28.21
Newsletter Cover - Steet, Mackay, Anholt

The latest edition of the Friend of the Center newsletter includes…

  • GGC and Clemson Collaborate on NIH’s First Center of Biomedical Research Excellence in Human Genetics,
  • New folic acid recommendations for women of childbearing age,
  • Rett Center of Excellence: GGC earns re-designation by International Rett Syndrome Foundation,
  • Bake Sales Leading to Breakthroughs: Family-led organizations are key to advancing rare disease research, and much more!

Download the full newsletter here.

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Meet Charlie

After a long three-year struggle trying to have children, our son, Charlie, was born on April 18, 2009. He was our miracle...perfect in every way! When Charlie was five days old, our pediatrician called to notify us that one of the numbers from the heel prick test was a bit high. We headed to the hospital that afternoon for more tests. I will never forget the following day. It was cool and crisp - not a cloud in the sky. The next thing I know, our ...
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