Friends of the Center Newsletter - Summer 2021

05.28.21
Newsletter Cover - Steet, Mackay, Anholt

The latest edition of the Friend of the Center newsletter includes…

  • GGC and Clemson Collaborate on NIH’s First Center of Biomedical Research Excellence in Human Genetics,
  • New folic acid recommendations for women of childbearing age,
  • Rett Center of Excellence: GGC earns re-designation by International Rett Syndrome Foundation,
  • Bake Sales Leading to Breakthroughs: Family-led organizations are key to advancing rare disease research, and much more!

Download the full newsletter here.

Meet The Jones Family

The journey to becoming parents did not start as an easy one for my husband and I. We suffered the heartache of miscarriage and the unimaginable pain of burying our first born child. Our son, sweet 1 lb 1.4 ounce, 12 inches long, teeny, tiny little Joseph “Hamilton” Jones was born with spina bifida, hydrocephalus, and a heart defect. It tore our hearts out leaving the hospital without him, knowing our dreams and hope for the future were shattered....

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