Friends of the Center Newsletter - Summer 2021

05.28.21
Newsletter Cover - Steet, Mackay, Anholt

The latest edition of the Friend of the Center newsletter includes…

  • GGC and Clemson Collaborate on NIH’s First Center of Biomedical Research Excellence in Human Genetics,
  • New folic acid recommendations for women of childbearing age,
  • Rett Center of Excellence: GGC earns re-designation by International Rett Syndrome Foundation,
  • Bake Sales Leading to Breakthroughs: Family-led organizations are key to advancing rare disease research, and much more!

Download the full newsletter here.

Toddler looking at a book with her parents

Meet Nora

Meet the Eysen family! Two-year-old Nora was diagnosed with Infantile Pompe disease at birth. Her family received much-needed information and support in those first days from the Greenwood Genetic Center, and thanks to a quick diagnosis, Nora is on treatment, healthy, and thriving. And she is now a proud big sister!...

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