Summer 2018 Newsletter

06.26.18
Summer 2018 Newsletter

A new ‘QUICKer’ way to get to the diagnosis…

Doubling the impact of Outreach Education

A road map for treating ultra-rare disorders and more…

GGC’s Summer issue of the Friends of the Center Newsletter is now available.

Download a pdf

Read online

Meet The Jones Family

The journey to becoming parents did not start as an easy one for my husband and I. We suffered the heartache of miscarriage and the unimaginable pain of burying our first born child. Our son, sweet 1 lb 1.4 ounce, 12 inches long, teeny, tiny little Joseph “Hamilton” Jones was born with spina bifida, hydrocephalus, and a heart defect. It tore our hearts out leaving the hospital without him, knowing our dreams and hope for the future were shattered....

In The News