Summer 2022 'Friends of the Center' Newsletter

Newsletter cover with family at Race the Helix

Catch up on all of the latest GGC news with the Summer 2022 ‘Friends of the Center’ newsletter! Articles include…

  • Families supporting families through Race the Helix-Upstate
  • Renewal of NIH grant to study lysosomal disorders,
  • An update on the GGC-MUSC agreement, and much more…

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Meet Ella

We will remember February 26th for the rest of our lives. On that day, we received the call from the Greenwood Genetic Center that they had discovered our daughter, Ella Marie, has Kleefstra syndrome. Very early on, my wife, Kelly, observed Ella being delayed in some of her milestones. Kelly monitored Ella’s progression and sought out testing in an effort to get Ella some assistance. Along the way, we were sent to GGC and met with LEARN MORE

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