Summer 2022 'Friends of the Center' Newsletter

06.01.22
Newsletter cover with family at Race the Helix

Catch up on all of the latest GGC news with the Summer 2022 ‘Friends of the Center’ newsletter! Articles include…

  • Families supporting families through Race the Helix-Upstate
  • Renewal of NIH grant to study lysosomal disorders,
  • An update on the GGC-MUSC agreement, and much more…

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Meet The Jones Family

The journey to becoming parents did not start as an easy one for my husband and I. We suffered the heartache of miscarriage and the unimaginable pain of burying our first born child. Our son, sweet 1 lb 1.4 ounce, 12 inches long, teeny, tiny little Joseph “Hamilton” Jones was born with spina bifida, hydrocephalus, and a heart defect. It tore our hearts out leaving the hospital without him, knowing our dreams and hope for the future were shattered....

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