Would You Want to Know? GGC Hosting Screening of Twitch Documentary

09.23.16
Would You Want to Know? GGC Hosting Screening of Twitch Documentary

Kristen Powers, was just 9 years old when her mother was diagnosed with Huntington’s Disease, a progressive neurological disorder that took her ability to walk, speak, think and reason. She passed away a few years later from this debilitating and devastating disease. Huntington’s Disease is hereditary. Kristen has a 50% chance that she inherited the gene.

Kristen chose to have genetic testing for the Huntington’s Disease gene when she turned 18. She documented that emotional process in the film, Twitch. Kristen will be in Greenwood on Tuesday, September 27th to screen the film and discuss her family story and how these experiences shaped her outlook on life. The trailer for Twitch can be viewed at www.twitchdocumentary.com

The screening will be held at Lander University’s Cultural Center Auditorium on Tuesday evening at 6:30pm. It is open to the public and free of charge. Lander students can receive FALS credit for attending. The event is sponsored by the Greenwood Genetic Center, Lander University, and the Rotary Club of Greenwood.

The Twitch screening is the kickoff event for the Greenwood Genetic Center’s Gene Week promoting and celebrating the work of the Center through educational offerings and family activities. The Center will host the 3rd annual Jammin’ for Genes barbecue and music lawn festival on Friday September 30, and the 6th annual Race the Helix® 5K race and 1 mile fun run/walk on Saturday, October 1. Additional information on all of the week’s events can be found at GGC.org/Gene-Week.

Lucy's Story

When our daughter Lucy had a metabolic crisis at 7 days old, we were shocked and devastated to find out that she was born with a rare genetic disorder (MSUD). Her newborn screening results did not make it back in time to prevent the crisis, and no one at our local hospital was familiar with the disease. They did not know how to treat her. Calls were made to Greenwood Genetic Center to confirm her diagnosis and guide her care. Dr. Champaigne and Ami...

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