Archives: Grateful Families Stories

nora

Meet Nora – Newborn screening and treatment is a literal lifesaver!

Meet the Eysens! Two-year-old Nora was diagnosed with Infantile Pompe disease at birth. Her family received much-needed information and support…
RTHG crop

Meet the Shenal Family – a grateful family gives back

The Shenal family at Race the Helix Greenwood in 2024 *The Shenal family – Stephen, Jodi, Tyler, and Ryleigh –…
jeremiah

Meet Jeremiah – For rare diseases, time is of the essence

At first things were going well. Jeremiah was a happy, healthy newborn, doted on by his mother, Aneesa, and his…
puskas

Meet Levi – The correct diagnosis leads to remarkable outcome

Levi was known to GGC even before his parents adopted him from China as they were seeking out information about…
Nikolai Wall Edit

Meet Nikolai – Never stop searching

When answers aren’t easy to find, we don’t stop searching. For nearly his entire life, Nikolai has been part of…
Rett

Meet Abbie – A Rett syndrome home away from home

“We found the Greenwood Genetic Center just a little over  a year after Abbie was diagnosed and found out that…