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Patient Support Groups

The Greenwood Genetic Center strives to help patients and their families connect with available resources and other families. We support several local and national parent organizations in numerous ways including coordinating meetings, providing meeting space, speaking, facilitating, sitting on boards, etc. Although there is no cure for most genetic conditions, our goal is to provide families with the education, knowledge, resources, and connections they need to enhance the quality of life for both the patient and the family as a whole.

Patient Support Groups

Family Resources

General Support Organizations

Family Connection of South Carolina

Family Voices

Genetic Alliance

Medline Plus: Genetics

National Organization for Rare Diseases

Newborn Screening (Screening, Technology and Research in Genetics)

Parent to Parent

South Carolina BabyNet Central Directory

Support Organizations for Specific Diagnoses

22q and You Center (22q11 deletion)

22q13 Deletion Syndrome Foundation (Phelan-McDermid syndrome)

Angelman Syndrome Foundation

Autism Speaks

CDG Care – Congenital Disorders of Glycosylation

Children’s Tumor Foundation (formerly National Neurofibromatosis Foundation)

Chromosome Disorder Outreach

Cure Sanfilippo Foundation

Doug Flutie Foundation for Autism

Epilepsy – SAFE (SC Advocates for Epilepsy)

Fragile X Syndrome – National Fragile X Foundation

International Rett Syndrome Foundation (IRSF)

ISMRD – International Advocate for Glycoprotein Storage Diseases

Little People of America

Microcephaly – Foundation for Children with Microcephaly

Muscular Dystrophy Association

National Association for Down Syndrome

National Down Syndrome Society

National Foundation for Autism Research

National MPS Society

National PKU Alliance

National Urea Cycle Disorders Foundation

Parent Project Muscular Dystrophy (for Becker and Duchenne MD)

Prader-Willi Syndrome Association

Project Rex (Autism Spectrum Disorder)

Smith Magenis Syndrome – PRISMS

South Carolina Autism Society

The Global Foundation for Peroxisomal Disorders

Turner Syndrome Society of the US

Unique Rare Chromosome Support Group

Velocardiofacial Syndrome Educational Foundation

Williams Syndrome Association

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