Summer 23 'Friends of the Center' Newsletter

Newsletter cover with four GGC employees with patient

The 2023 Summer issue of the ‘Friends of the Center’ Newsletter is available!

  • GGC plays important role in FDA-approval for first ever Rett syndrome drug
  • GGC and MUSC join forces for precision health initiatives
  • Dylan’s Law for Krabbe disease screening goes into effect with GGC support
  • GGC postdoc accepted to prestigious course and much more…

Download pdf here

Read online here



Meet Ella

We will remember February 26th for the rest of our lives. On that day, we received the call from the Greenwood Genetic Center that they had discovered our daughter, Ella Marie, has Kleefstra syndrome. Very early on, my wife, Kelly, observed Ella being delayed in some of her milestones. Kelly monitored Ella’s progression and sought out testing in an effort to get Ella some assistance. Along the way, we were sent to GGC and met with Dr. Roger St...

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